Thursday, June 30, 2016

Post-op day 2



Finished one book. Started one knitting project (frogged shrug--repurposing yarn). Took only one nap. Walked 4427 steps. Took 2 Tylenol all day. Feel like I was beaten with a baseball bat from my neck to my thighs, but only when I poke myself. :)

Doing soooo much better.  Hoping to leave the house tomorrow.


Wednesday, June 29, 2016

Reconstruction Surgery (check)






Well, it's done.  :)   

I have to say, to those of you who said what a breeze this surgery would be, that I wouldn't call it a breeze.  But I am feeling better by the hour.  Greg and I just took a walk around the block and that didn't kill me.

Some things were slightly different from the first surgery.  For one, it was only 4 1/2 hours.  And the anesthesiologist (different one) didn't have me use the motion sickness patch.  In the short term, that was a bad decision (I was really queasy after surgery and the ride down to the car in the wheelchair and the ride home were decidedly NOT pleasant).  But in the long term, I think it was good.  I never had the vision problems and the nausea went away sometime last night.

I also told the anesthesiologist about my TMJ issues and how bad they got after my first surgery.  So instead of the regular way they put in the breathing tube (where he basically said they pull apart your jaw--which is what TMJ is), he used a fiber optic guide to get it in.  So I don't feel like my jaw's screwed up, although I do feel like my throat is a lot more banged up.  Maybe I'm just less "out of it" this time so the little things annoy me.

So bit by bit, here's what they did:

I decided to have the port-a-cath taken out during this surgery.  I know it's supposed to be minor, (done in an office) but I'd also heard that it hurt a lot, so I figured I might as well have it done while I was under.  Also, why not have my plastic surgeon stitch it up?  Probably more meticulous, right?  He also made that incision way over near my armpit so it'll be less visible (not that I really care, but if I have to go through all this, I might as well take the little perks!).

Then there's the implants.  Dr. Sterkin had to make new incisions under my breasts for them because the incisions used for my mastectomy weren't big enough.  He had thought he'd have to put in alloderm (cadaver skin) on the irradiated side to make room, but ended up not needing to.  Those incisions don't hurt much at all.  I'm bruised but its pretty obvious surgical bruising and not very deep.  I have two drains in (compared to five last time) and they have smaller drain tubes.  I'm sure they'll irritate me just as much in a few days, but for now they're okay.

The big surprise in terms of both pain and appearance is where he harvested the fat to fill out my breasts.  When he described it, it was, "we'll just take some fat from your belly to round out your breasts" and I was all, "hell, yeah!"  But it was liposuction (duh) and holy crap am I bruised!  I have a belly-binder to hold things in, but the bruising on my belly and down my thighs is crazy.  Even the post-op nurse couldn't help but make a surprised noise.  I'm assuming that at least part of it is due to my platelets.  Although they were at 85K for my pre-op bloodwork, they tested them yesterday and they'd dropped to 64K, so I got a platelet transfusion  (Once again, thank you to anyone who donates blood, but especially platelets, as I know it takes longer for them to take out the blood, grab the platelets, and then put the blood back)

Other than the bruising, I'm doing really well.  I refused to fill the prescription for Oxycodone and so far my pain is managed fine with regular Tylenol.  I hope to avoid all those other unpleasant narcotic side-effects, too.  :)

I have my follow-up appointment scheduled for next Tuesday afternoon.  My hope is that the drains will come out and I'll be cleared to return to work--at least parttime.  I'm still kind of bummed to not be able to do Summerfest this year, and I don't think I'll be going to the fireworks on the 4th.  But all in all, this went very well.  I have no doubt it's because of all the positive thoughts and prayers that you all sent my way.  Reading everything on Facebook brought tears to my eyes.  Thank you all for continuing on this journey with me!


Saturday, June 25, 2016

Surgery #3

I realize it's been quite awhile since my last post. Over two months, in fact--by far the longest I've gone since starting this blog. That, in itself, is a sign of how far I've come. :)

I went two months between visits with Dr. Shah (And it'll be 3 months before I see her again. More baby steps.). My repeat hormone tests solidified the fact that I'm in menopause, so I've switched from tamoxifen to Arimidex. So far, so good, though it's only been 11 days. :)  The reason for the switch is better severe potential side effects (tamoxifen --> endometrial cancer; Arimidex only--> osteoporosis), although anecdotally I've heard that the more-likely side effects are much worse with Arimidex (bone aches). What I've noticed so far is that I'm having very different hot flashes. On tamoxifen, I'd turn beet red and my heart would race. With Arimidex I just start sweating like crazy. (Oh, joy--and if you see me and go to hug me, you might want to remember that tidbit ;))

I also had my first booster shots for the clinical trial (which will be every 6 months for 2 years).  They take blood at each appointment, too.  So I got to make good use of my port.  As my friend Katie says, I ran into a vampire.




I'm psyching myself up for my third breast surgery. (If you want to re-live the others, my double mastectomy with ancillary lymph node dissection on 1/8/15 is chronicled here, and my surgical debridement and re-suturing on 2//15 here.)  This third surgery removes my expanders and replaces them with my permanent gel implants.   I decided 18 months ago to go with shaped silicone implants (called "gummy bears"), so that determined the type of expander I got.  If you want to see the difference between the implants I'm getting, regular silicone,  and saline, here's a photo:





I know I posted about it before, but the expanders that I have look like this.


They're uncomfortable not only because I can feel the metal valve used to add saline, but also due to their size.  I feel them under my arms, and they make things like bike riding difficult. 

Therefore this is the surgery I'd been looking forward to for over a year.  However, now that it's here, I'm a bit nervous.  I keep telling myself that I did just fine with a much more invasive, longer surgery and that this is just cosmetic.  But it's still surgery and as I read over my blog posts (and my private journal) from the first surgery, I may have forgotten just how rough it was!  I'm mostly afraid that I'll exacerbate my TMJ, which has gotten so much better after 6 months of wearing splints.  I don't want to un-do that!  

I'm expected to need two weeks to recover.  I'm hoping it won't take that long, but I've stocked up on reading material (our first 3 book club books now that we've re-formed):





And picked a knitting project:

I'm hoping I'll be up to visiting, and be able to resume walking quickly.

At any rate, all of you have been so wonderful with all the other crap I've had to go through. If you have a chance, send me some positive, successful-surgery-without-needing-a-platelet-transfusion thoughts on Tuesday.  Surgery is scheduled to begin at 7:30 am and last 4 hours.  Greg has said he'll post updates on Facebook.

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Other good stuff is happening.  I have enough real hair to have something done with it, so I did--got it highlighted and cut and then we had family photos taken, including some fun ones:



Travis turned 18 and graduated from high school. The time goes so fast.  I still wonder how this baby:


Became this accomplished man:



And finally, our remodeling project is done!  Photos (before and after) are on unpinkening.blogspot.com.  

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Happy summer, everyone.  Here's to speedy healing so we can still get some Festivals, Bier Garten visits, and beach trips in.